KidsData.org

Overview:

  • Kidsdata.org offers more than 300 indicators on the health and well being of children in communities across California.
  • The website, launched in 2004, is a project of the Lucile Packard Foundation for Children’s Health.
  • The website initially provided data for San Mateo and Santa Clara counties, along with statewide comparisons. In 2007, kidsdata.org expanded to include other counties in the San Francisco Bay Area, including Alameda, Contra Costa, Marin, and San Francisco.
  • In fall 2009, kidsdata.org expanded to all counties, cities and school districts in California – about 1,600 regions. For more information about this expansion, visit http://www.kidsdata.org/statewide.
  • Nearly all data on the site are from public sources, though some indicators come from a Lucile Packard Foundation survey of parents about their child’s well being. You can find information and links to the data sources in the notes below tables, maps, or graphs on indicator pages, or you can view a list of the data sources.
  • Source Link
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National Provider Identifier Registry

Overview:

  • The National Provider Identifier (NPI) was adopted as the standard unique health identifier for health care providers to carry out a requirement in the Health Insurance Portability and Accountability Act of 1996 (HIPAA)
  • The Centers for Medicare & Medicaid Services (CMS) then developed the National Plan and Provider Enumeration System (NPPES) to assign these unique identifiers.
  • Any entity who meets the definition of a “health care provider” is eligible to receive a provider ID, or NPI.  That would mean any provider of medical or other health services, and any other person or organization that furnishes, bills, or is paid for health care in the normal course of business.
  • Under HIPAA, a covered health care provider is any provider who transmits health information in electronic form in connection with a transaction for which standards have been adopted. These covered health care providers must obtain an NPI and use this number in all HIPAA transactions
  • The NPI Registry enables you to search for a provider’s NPPES information to retrieve read-only data. For example, users may search for a provider by the NPI or Legal Business Name.
  • It’s pretty well maintained. A covered health care provider must notify the NPPES of the address change within 30 days of the effective date of the change.
  • Source Link
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CMS Healthcare Cost Report Information System

Overview:

  • Medicare-certified institutional providers are required to submit an annual cost report to a Fiscal Intermediary (FI).
  • The cost report contains provider information such as facility characteristics, utilization data, cost and charges by cost center (in total and for Medicare), Medicare settlement data, and financial statement data.
  • CMS maintains the cost report data in the Healthcare Provider Cost Reporting Information System (HCRIS).
  • The following cost reports are available. Each fiscal year is a separate zipped file, except where noted specifically.
    1. Hospice (there is one zipped file that contains all data for all the fiscal years)
    2. Renal
    3. Hospital (because of the size, can’t be loaded in excel)
    4. SNF (Skilled Nursing Facilities- can’t be loaded in excel either)
    5. HHA (Home Health Agencies)
  • Source Link
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Hospital Consumer Assessment of Healthcare Providers and Systems

Overview:

  • A standardized survey instrument and data collection methodology for measuring patients’ perspectives on hospital care
  • Contains 18 patient perspectives on care and patient rating items that encompass eight key topics:
    1. communication with doctors
    2. communication with nurses
    3. responsiveness of hospital staff
    4. pain management
    5. communication about medicines
    6. discharge information
    7. cleanliness of the hospital environment
    8. quietness of the hospital environment.
  • The survey also includes four screening questions and five demographic items, which are used for adjusting the mix of patients across hospitals and for analytical purposes.
  • The survey is 27 questions in length.
  • Hospitals voluntarily do HCAHPS survey via paper, telephone or Interactive Voice Response.
  • Beginning in 2002, CMS partnered with AHRQ to develop and test the HCAHPS survey
  • In May 2005, NQF an organization established to standardize health care quality measurement and reporting, formally endorsed the CAHPS® Hospital Survey
  • The number of hospitals that publicly report HCAHPS results has increased from 2,521 in March 2008 to 3,774 in July 2010.
  • Source Link
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About Data.Multiplyd

Data is the primary foundation for all emerging ideas in Healthcare IT. The Data.Multiplyd section is a repository of notable data sources that are available currently. Most of these are open, public datasets that have resulted from years of federal investments.

In January 2009, the US government issued the Open Government directive which instructs executive departments and agencies to take specific actions to implement the principles of transparency, participation, and collaboration. For HHS that has translated into the Community Health Data Initiative (CHDI).

For now this section is a shallow running list of what all is out there. Trailing behind is in-depth analysis (mostly as embedded mindmaps) of each data set- what elements, how useful, how recent etc. To browse, scroll down for the recent posts or choose the data source or keyword on right to filter.

If you have feedback about a specific data set, leave a comment in that post. If you’d like to contribute to this research, reach out.

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Community Health Status Indicators

Overview:

  • County-level indicators of health
  • Covers 3,141 US counties
  • Approx 200 elements
  • Launched in 2000, in hiatus 2004-2006, but working since then
  • Source link

Elements:

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